In the summer of 2004 my father was diagnosed with Multiple Myeloma Cancer. He told his doctor about pain in his ribs. His doctor hospitalized Dad and started running tests. Even after all his treatments, his doctors assured my dad and his family his cancer would go into remission and he could have another 10 good years. How wrong they were. What the cancer doesn’t destroy, all the side effects from the treatments and medications did. He was sick the majority of the time.
Aside from a few hospital stays, he was able to stay home most of the summer but by November he never saw his home again. He spent the rest of his life between University of Michigan hospital and rehab facilities. He went from 154 to 120 pounds. My mother was my father’s rock. They were deeply devoted couple married 60 years. My mother visited my dad every day. Overall, my father maintained a wonderful sense of humor so we were able continue laughing throughout his remaining life. Sometimes he lifted my mother’s spirits when she was sad.
My parents were the inspiration and guidance for, Designated Caregiver. In addition to writing a practical, easy to follow informative manual, my book also contains antidotes, photos, and a resource section.
American Cancer Society - The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. Our Global Headquarters are located in Atlanta, Georgia, and we have regional and local offices throughout the country to ensure we have a presence in every community. Whether you or someone you love has cancer, knowing what to expect can help you cope. From basic information about cancer and its causes to in-depth information on specific cancer types – including risk factors, early detection, diagnosis, and treatment options – you'll find it with American Cancer Society website.
800-227-2345 – Cancer helpline www.cancer.org
American Lung Association - The leading organization working to save lives by improving lung health and preventing lung disease. 800-LUNG-USA www.lung.org firstname.lastname@example.org
American Parkinson Disease Association - Works to raise awareness of Parkinson disease, research, patient support and education. 800-223-2732 www.apdaparkinson.org
American Stroke Association - Offers information on different types of strokes, diagnosis, and treatment. Offers support materials for both caregivers and patients. 888-478-7653 www.strokeassociation.org
Cancer.net - Provides timely, comprehensive, oncologist-approved information from the American Society of Clinical Oncology (ASCO) with support from the Conquer Cancer Foundation. Brings information to people living with cancer and their caregivers. ASCO's patient information website -- Cancer.Net (www.cancer.net) -- provides timely, oncologist-approved information to help patients and families make informed health care decisions. All content is subject to a formal peer-review process by the Cancer.Net Editorial Board, composed of more than 150 medical, surgical, radiation, and pediatric oncologists, physician assistants, oncology nurses, social workers, and patient advocates. In addition, ASCO editorial staff reviews the content for easy readability. Cancer.Net was launched in May 2002 as People Living With Cancer (PLWC). In April 2008, the website was relaunched as Cancer.Net (www.cancer.net). It undergoes regular formatting updates to meet visitor needs, including a full redesign in August 2014. Cancer.Net has received several honors for its content, design, and ease of use. Cancer.Net is funded by the American Society of Clinical Oncology (ASCO) and by donations to ASCO’s patient education program through the Conquer Cancer Foundation
email@example.com 517-483-1780 www.cancer.net
Creutzfeldt-Jakob Disease - Site contains information, education compiled with needs of CJD patients and their families. Members want to be supportive and others who have had similar experiences. Comprehensive pamphlet, website, educational DVD's annual conference. Helpline 800-659-1991 www.cjdfoundation.org www.cjdfoundation.org
The Interstitial Cystitis Association - (ICA) advocates for research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with constant urinary urgency and frequency and extreme bladder pain called IC, or interstitial cystitis. There are many regularly meeting interstitial cystitis (IC) support groups located throughout the US and around the world. Online networks offer an easy way to connect with others with IC.
7918 Jones Branch Drive, Suite #300, McLean, VA 222102 firstname.lastname@example.org
Lewy Body Dementia Association - Dedicated to raising awareness of LBD, supporting people with this condition, their families and caregivers and promote scientific research. 404-935-6444 Caregiver Link - 800-539-529-9767 www.lbda.org email@example.com
National Institute of Neurological Disorders and Stroke - The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. To accomplish this goal the NINDS supports and conducts basic, translational, and clinical research on the normal and diseased nervous system. The Institute also fosters the training of investigators in the basic and clinical neurosciences, and seeks better understanding, diagnosis, treatment, and prevention of neurological disorders NIH Neurological Institute, P.O. Box 5801, Bethesda, MD 20824 Voice: (800) 352-9424 or (301) 496-5751 www.ninds.nih.gov
National Parkinson Foundation - Dedicated to promoting their passionate belief that the best care is a comprehensive approach that addresses the whole person and full range of symptoms of the disease, while continuously searching for the next insight that will change the course of the disease. Helpline 800-473-4636 www.parkinson.org firstname.lastname@example.org
National Spinal Cord Injury Association - (NSCIA) Improve quality life people living with spinal cord injuries or disease. Provide active-lifestyle information, peer support and advocacy to help empower them. www.spinalcord.org 718-803-3782